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  • Fibulaaplasie - Prothese - Orthoprothese | © Pohlig GmbH
    Patient stories
    Juna – the little mermaid with fibular aplasia
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Left orthoprosthesis, right prosthesis

Juna’s a great sport

Juna is a super athlete. She loves water and everything that moves quickly. Perhaps that’s why the six-year-old likes to ride roller blades and skates. At first glance, many people don't even notice that Juna wears two aids on her legs.

Juna was born with bilateral fibular aplasia, which means she had no calf bones. This is a congenital disorder whose cause is still unknown to this day. Juna’s legs were much shorter from the start than with a healthy child. She is also missing a few toes. All of this makes it difficult for her to stand on both legs or walk for long periods of time.

At the age of four, Juna’s parents decided that it’s best for her to amputate her right lower leg. Juna is much more mobile since the amputation. She can now put much more weight on her right leg and also slip into her prosthesis more easily. Juna still wears an orthoprosthesis on her left leg. This is basically a mixture of prosthesis and orthosis. An orthoprosthesis compensates for the length deficit on the deformed leg (prosthesis portion) and supports it at the same time (orthosis portion).

Fibulaaplasie - Dysmelie - Hilfsmittel | © Pohlig GmbH
Fibulaaplasie mit Prothese und Orthoprothese | © Pohlig GmbH

Juna does not have any problems with her physical disability in everyday life. She’s a confident, happy girl that can't be limited by anything. In her free time, she learns how to react correctly in the event of a fire every week in the children’s fire brigade. She also loves to romp with her friends and ride a bicycle or scooter. Of course, she sometimes notices that she’s out of breath a little faster than the other children, but she manages well. When Juna is asked how she finds her prosthesis and orthoprosthesis – where 1 means "super" and 10 means “bad” – she calls out promptly: “One!”

Baden mit Prothese | © Pohlig GmbH

Because Juna often travels to the sea with her family on vacation, she also has two bathing prostheses in her bag. After all, she wants to not only build sandcastles with her brother, but also jump into the water. This does not work with her normal prosthesis. In contrast, there are small holes in the bathing prosthesis to allow the water to run off.

Juna will soon start school. She is already looking forward to getting to know new children and playing with them on the playground. Every person is unique, she thinks. And that’s a good thing.  

Fibulaaplasie ohne Versorgung | © Pohlig GmbH

Juna was amputated on her right lower leg. Her left leg is significantly shortened due to the lack of calf bone.

Fibulaaplasie mit Versorgung | © Pohlig GmbH

This primary school pupil wears a lower leg prosthesis on the right and an orthoprosthesis on the left, which extends and supports her leg.

Icon Orthoprothese | © Pohlig GmbH
What is an orthoprosthesis?

This device compensates for the leg length deficit and provides corrective support.

We connect you!

Standbein e.V. is a non-profit self-help group for people with PFFD, fibular or tibial defects, as well as their families.

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